Other Meningioma Blogs
There are many people besides me sharing their meningioma stories on the Internet. Mine is actually the least disruptive story. My meningioma is tiny and was found by accident. But I’ve heard of so many stories where the meningioma was quite large when it was found, and causing problems. My veterinarian had a peach-sized meningioma removed when she was in her sixties!
I thought you might like to visit some of the other meningioma blogs out there. There are some wonderfully amazing stories to educate and perhaps to give you encouragement.
By author Liz Holzhemer, wife of a major league pitcher who had a “baseball-sized” meningioma. She formed a community of over 2900 “mommas and poppas” all over the world who have this type of brain tumor in common.
Since Liz founded Meningioma Mommas, she has been honored with the Woman’s Day “Women Who Inspire Us” award; is the recepient of the 2006 Tim Gullikson Spirit Award; has received Denver’s ABC “7 EveryDay Hero” and Denver’s NBC “9Who Care” awards and has appeared on the Discovery Health Channel, the TODAY Show and local television and in print to share her remarkable story while inspiring others. She also serves on the board of trustees for the Brain Science Foundation.
For more information about Liz, visit her writing website at www.lizholzemer.com Her book Curveball: When Life Throws You A Brain Tumor has arrived and is already a Denver non-fiction best-seller. Liz is donating a percentage of every sale of her book to meningioma research.
Ashylyn Gray died at the age of 72 but her daughter has posted her journal entries on this blog. Ashlyn suffered from meningiomas and surgeries for 30 years, dating way back to when medical science was not so hot. What a great story, I am in love with Ashlyn and her family.
Just a one-pager about a girl with multiple types of brain tumors. Thus far, they have left the large meningioma alone and just removed the other tumors that were causing symptoms.
A long one-pager, a difficult read but worthwhile as she has journeyed through several meningiomas.
A short one-pager about a woman who was told she had a brain tumor on the phone while standing in the home improvements store. It was a meningioma pressing on her optic nerve.
By “Tumor Girl”, a 37-year-old girl with multiple meningiomas, at least one of which had to be removed surgically. Her continuing journal entries are fascinating!
A new blog, new diagnosis, by New Zealand photographer Chana Hera Davis. Beautiful photos, wonderful style of story-telling.
Dear Teresa,
Thank you for creating wonderful a website with many helpful resources that will help give insight and understanding to the nature of a Meningioma.
A huge hug of support from one Meningioma warrior to another Meningioma warrior - you are beautiful inside and out.
Kind Regards
Chana Hera Davis - NZ
Chana,
Such a lovely hug from you this morning, thank you! Your strength lifts me.
Blesisngs to you!
Teresa - Colorado
I am looking for advise. I have been through 5 surgeries,1 gamma knife, Radiation,Chemotherapy and the meningioma’s are multiplying in numbers and ares. was 26 years old when first diagnosed, I am now 41 with years of feeling like when is my day.
Danny,
Bless you! It must feel never-ending.
You undoubtedly know more about meningiomas now than just about anyone, having 15 years of experience with them. So I would not want to be glib.
Could I just suggest that you look at the left-hand side of my blog where it has a paper by Dr. Jeanne M. Wallace, a top nutritionist who works with the Brain Tumor Organization and lectures at various Brain Tumor conferences. She has a host of suggestions for things to do to support your surgeries, etc….
Browse through the articles here — there are almost a year’s worth — and then check out the Meningioma Mommas blog, listed here on the “other blogs” page. They have a huge support group.
Big hugs to you, you are a trooper!
Teresa